On behalf of the ERCAL Initiative Steering Committee, we are ready to continue the discussions initiated in 2020. We are scheduling country-specific discussions of rare diseases activities in the region following this suggested Template of Rare Disease Related Issues to be Discussed for Each Country
- Status of Existing Legislation and Policies in Your Country
- Current National Activities and Areas of Emphasis
- Challenges, Barriers, or Obstacles to Needs in the Rare Diseases Community
- Legislative or Policy Needs in Research, Regulatory, or Healthcare Services
- Opportunities for Future Collaboration
- Suggested Activities for Country, Region, or a Sustainable ERCAL
Session 3 · Rare Diseases in Brazil – April, 13th, 2021
Video – Roberto Giugliani and Ariadne Dias
Session 2 · March, 30th, 2021
Video – Joana Mendivelso
Video – Luis Alejandro Barrera
Video – Sylvia Hafez and Linda Díaz
The recording of this meeting will be ready soon.
Joana Mendivelso
Luis Alejandro Barrera
Sylvia Hafez and Linda Díaz
Session 1 · March, 16th, 2021
Video