On behalf of the ERCAL Initiative Steering Committee, we are ready to continue the discussions initiated in 2020. We are scheduling country-specific discussions of rare diseases activities in the region following this suggested Template of Rare Disease Related Issues to be Discussed for Each Country
- Status of Existing Legislation and Policies in Your Country
- Current National Activities and Areas of Emphasis
- Challenges, Barriers, or Obstacles to Needs in the Rare Diseases Community
- Legislative or Policy Needs in Research, Regulatory, or Healthcare Services
- Opportunities for Future Collaboration
- Suggested Activities for Country, Region, or a Sustainable ERCAL
Session 7 · June 8, 2021
Video – Dr. Carlos Salazar-Vargas; Nancy Elena Rivas (Costa Rica)
Dr. Carlos Salazar-Vargas
(Costa Rica)
Presentation
Nancy Elena Rivas
(Costa Rica)Presentation
Session 6 · May, 25, 2021
Video – Dr. Marta Ascurra (Paraguay); Dr. Claudia Gonzaga-Jáureui (Mexico)
Video – Dr. David Peña (Mexico)
Dr. Claudia Gonzaga-Jáuregui (Mexico)Presentation
Dr. David Peña (Mexico)Presentation
Dr. Marta Ascurra (Paraguay)Presentation
Session 5 · May, 11, 2021
Video – Cecilia Bonilla, Milagros Dueñas & Mario Cornejo, from Peru
Dr. Claudia Gonzaga-Jáuregui (Mexico)Presentation
Cecilia Bonilla, Milagros Dueñas & Mario Cornejo (Peru)
English versionPresentation
Session 4 · April 27, 2021
Video
(The presentation starts in the min 12 of this video)
Session 3 · Rare Diseases in Brazil – April 13, 2021
Video – Roberto Giugliani and Ariadne Dias
Session 2 · March 30, 2021
Video – Joana Mendivelso
Video – Luis Alejandro Barrera
Video – Sylvia Hafez and Linda Díaz
Joana MendivelsoPresentation
Luis Alejandro BarreraPresentation
Sylvia Hafez and Linda DíazPresentation
Session 1 · March 16, 2021
Video