On behalf of the ERCAL Initiative Steering Committee, we are ready to continue the discussions initiated in 2020. We are scheduling country-specific discussions of rare diseases activities in the region following this suggested Template of Rare Disease Related Issues to be Discussed for Each Country

  1. Status of Existing Legislation and Policies in Your Country
  2. Current National Activities and Areas of Emphasis
  3. Challenges, Barriers, or Obstacles to Needs in the Rare Diseases Community
  4. Legislative or Policy Needs in Research, Regulatory, or Healthcare Services
  5. Opportunities for Future Collaboration
  6. Suggested Activities for Country, Region, or a Sustainable ERCAL

Session 3 · Rare Diseases in Brazil – April, 13th, 2021

Video – Roberto Giugliani and Ariadne Dias

Ariadne DiasPresentation

Roberto GiuglianiPresentation

Session 2 · March, 30th, 2021

Video – Joana Mendivelso

Video – Luis Alejandro Barrera

Video – Sylvia Hafez and Linda Díaz

The recording of this meeting will be ready soon.

Joana MendivelsoPresentation

Luis Alejandro BarreraPresentation

Sylvia Hafez and Linda DíazPresentation

Session 1 · March, 16th, 2021


Dr. Steve GroftPresentation

Dr. Emilio Roldan / Ana Maria FortePresentation