Country-Specific Activities - ERCAL

Country-Specific Activitiesadministrador2021-08-19T16:36:28+00:00

On behalf of the ERCAL Initiative Steering Committee, we are ready to continue the discussions initiated in 2020. We are scheduling country-specific discussions of rare diseases activities in the region following this suggested Template of Rare Disease Related Issues to be Discussed for Each Country

Status of Existing Legislation and Policies in Your Country
Current National Activities and Areas of Emphasis
Challenges, Barriers, or Obstacles to Needs in the Rare Diseases Community
Legislative or Policy Needs in Research, Regulatory, or Healthcare Services
Opportunities for Future Collaboration
Suggested Activities for Country, Region, or a Sustainable ERCAL

Session 12 · August 12, 2021

Video

Presentation: Licda. Clarivel Castillo Barrientos Rett (Guatemala)

<img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" />

Licda. Clarivel Castillo Barrientos Rett (Guatemala)

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Presentation: Dra. Migdalia Denis (LATAM)

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Migdalia Denis LATAM

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Presentation: Dra. Patricia Lucki – Angel Asociación (Guatemala) – Versión en español

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Patricia Lucki - Angel Asociación Guatemala - Versión en español

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Presentation: Dra. Patricia Lucki – Angel Association (Guatemala) – English version

<img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" />

Patricia Lucki -Angel Association Guatemala - English version

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Session 11 · August 2, 2021

Video

Presentation: Dra. Maria Luara Baz & Lic. Ana Fernandez (Venezuela) · English version

<img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" />

Dra. Maria Luara Baz & Lic. Ana Fernandez (Venezuela) English version

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Presentation: Dra. Maria Luara Baz & Lic. Ana Fernandez (Venezuela) · Spanish version

<img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pptx.png" />

Maria Luara Baz & Lic. Ana Fernandez Venezuela 02082021 Spanish version

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Presentation: Dr. Francisco Javier Conectiva

<img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.png" />

Francisco Javier Conectiva-emergency-cards-eng

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Presentation: Dra. Maitte Hernandez (Venezuela)

<img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.png" />

Maitte Hernandez Venezuela 02082021

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Session 10 · July 20th, 2021

Video

Presentation: FIDEP (Bolivia)

<img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" />

FIDEP (Bolivia) - 20 July 2021

1 archivo(s) 1.27 MB

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Presentation: Dra. Beatriz Luna (Bolivia)

<img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" />

Dra. Beatriz Luna (Bolivia) - 20 July 2021

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Presentation: Dr. Alberto Santiago Cornier (Puerto Rico)

<img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" />

Dr. Alberto Santiago Cornier (Puerto Rico) · 20 July 2021

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Session 9 · July 7, 2021

Video
Dr. Honna L. Silfa (República Dominicana)
Dr. Lindsay Antonia Borjas Aguilar (Honduras)

Presentation: Dr. Honna L. Silfa (República Dominicana)

<img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" />

Dr. Honna L Silfa (República Dominicana) - 7 July 2021

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Presentation: Dr. Lindsay Antonia Borjas Aguilar (Honduras)

<img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" />

Dr. Lindsay Antonia Borjas Aguilar (Honduras) - 7 July 2021

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Session 8 · June 22, 2021

Video – Dr. Gerardo Mejia (Nicaragua)

Presentation: Dr. Gerardo Mejia (Nicaragua)

<img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" />

Dr. Gerardo Mejia (Nicaragua) · 22 June 2021

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Presentation: Dr. Víctor Raggio (Uruguay)

<img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img alt="Icono" data-src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" class="wpdm_icon lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==" /><noscript><img class="wpdm_icon" alt="Icono" src="http://ercal.icord.es/wp-content/plugins/download-manager/assets/file-type-icons/pdf.svg" />

Dr. Victor Raggio (Uruguay) · 22 June 2021

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Session 7 · June 8, 2021

Video – Dr. Carlos Salazar-Vargas; Nancy Elena Rivas (Costa Rica)

Dr. Carlos Salazar-Vargas
(Costa Rica)Presentation

Nancy Elena Rivas
(Costa Rica)Presentation

Session 6 · May, 25, 2021

Video – Dr. Marta Ascurra (Paraguay); Dr. Claudia Gonzaga-Jáureui (Mexico)

Video – Dr. David Peña (Mexico)

Dr. Claudia Gonzaga-Jáuregui (Mexico)Presentation

Dr. David Peña (Mexico)Presentation

Dr. Marta Ascurra (Paraguay)Presentation

Session 5 · May, 11, 2021

Video – Cecilia Bonilla, Milagros Dueñas & Mario Cornejo, from Peru

Dr. Claudia Gonzaga-Jáuregui (Mexico)Presentation

Cecilia Bonilla, Milagros Dueñas & Mario Cornejo (Peru)
English version Presentation

Session 4 · April 27, 2021

Video
(The presentation starts in the min 12 of this video)

Cecilia Rodríguez (Chile)Presentation

Gabriela Repetto (Chile)Presentation

Arianne Llamos (Ecuador)Presentation

Eliecer Quisoe (Ecuador)Presentation

Session 3 · Rare Diseases in Brazil – April 13, 2021

Video – Roberto Giugliani and Ariadne Dias

Ariadne DiasPresentation

Roberto GiuglianiPresentation

Session 2 · March 30, 2021

Video – Joana Mendivelso

Video – Luis Alejandro Barrera

Video – Sylvia Hafez and Linda Díaz

Joana MendivelsoPresentation

Luis Alejandro BarreraPresentation

Sylvia Hafez and Linda DíazPresentation

Session 1 · March 16, 2021

Video

Dr. Steve GroftPresentation

Dr. Emilio Roldan / Ana Maria FortePresentation