Join to the ERCAL Strategy

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Join to the ERCAL Strategy

Join to the ERCAL StrategyERCAL2020-11-09T16:11:42+00:00

ICORD is seeking participants to assist in the development of an initiative to address Rare Diseases issues in Latin American Countries and Caribbean Nations.

Please let us know if you would like to participate in any of the Work Groups of your choice (please see list) and share your knowledge and experiences in rare diseases.

For self-nominations please the following form and add a short CV of no more than 5 pages

Gender

Please, mark those Work Groups which would be under your area of interest:

Research Infrastructure – National Legislation, Needs Assessment, and Health Care, Research, and Regulatory Policies

Research Collaboration/Research Networks and Consortia

Technology Advances – Telehealth, Telemedicine

Training of Research Investigators and Clinicians

Clinical Care and Treatments

Diagnosis and Genomic Advances

Underserved populations such as indigenous people who are economically disadvantaged and under-reported

The Expanding Role of Patient Advocacy Groups

Preclinical Innovation, Product Discovery, and Development

Impact of COVID-19 Pandemic on Rare Diseases Research – Present and Future Concerns and Other Opportunities

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