Guide for Work Group Discussions and Report Format

In order to harmonize the report provided by 10 different Work Groups, we recommend the use of a standardize format for your discussions and developing Work Group reports using a general scheme as follows: (You are Not limited to these sections may add others to meet your Work Group Needs during the discussions and writing of the Report

  • Introduction, Background, Current Status Summary
  • Difficulties and barriers encountered for specific issues
  • Vision, recommended activities, potential solutions, and present and suggested future opportunities
  • Future priorities, possible collaborations, and necessary partners
  • Policy and legislative needs in each country contemplating an emphasis on rare diseases and orphan products
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VIDEO DR. GROFT

PRESENTATION DR. GROFT